#CongenitalRubellaSyndromeSurvivors Senior and Disabled Irish Twins : Ann and Margaret Kennedy need help to travel to the USA from Ireland for special research and diagnosis for rare Medical conditions. @UDNconnect @annkenn71568464 #CongenitalRubellaSyndrome
https://t.co/vfaEyVyeRo
https://www.gofundme.com/f/twins-travel-urgently-to-usa-for-diagnosis?utm_source=facebook&utm_medium=social&utm_campaign=p_cp+share-sheet
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Tuesday, September 10, 2019
Congenital Rubella Syndrome Survivors : Senior and Disabled Irish Twins need help to travel to the USA from Ireland for special research and diagnosis for rare Medical conditions.
Monday, January 21, 2019
A Congenital Rubella Syndrome survivor shows how she overcame her obstacles
Courtenay Turner a #CongenitalRubellaSyndromeSurvivor talks & shows how she overcame her obstacles put in front of her by #CongenitalRubellaSyndrome in her motivational 2019 video: "I would never function" #CRS https://youtu.be/eYYqwyQc56o
Tuesday, November 13, 2018
Congenital rubella syndrome: ‘My twin sister and I have endured a shocking journey’
‘I have CRS and advocate to stem this awful condition through our vaccination programme’
about 12 hours ago by Ann Kennedy
https://www.irishtimes.com/life-and-style/health-family/congenital-rubella-syndrome-my-twin-sister-and-i-have-endured-a-shocking-journey-1.3689354?fbclid=IwAR3Ru5hMqy2euAAVmijqL8EuF8oake0pvGPSKwFilUe-vPiz0wm9YabymYg
#CongenitalRubellaSyndrome #CRS
Wednesday, February 28, 2018
Living With Congenital Rubella Syndrome - Survivor Stories
http://news.trend.community/home/crs-survivors
Living With Congenital Rubella Syndrome - Survivor Stories
Thursday, February 15, 2018
The CRS Patient Voice Initiative
http://news.trend.community/home/the-crs-patient-voice-initiative
The CRS Patient Voice Initiative , please re-share, and re-Tweet: http://news.trend.community/home/the-crs-patient-voice-initiative , to get your invitation, go to: https://trend.community/ .
Can I please ask a favor of my friends and fellow members: Even if there isn't anyone in your immediate circles that have Congenital Rubella Syndrome, there's bound to be someone out there that this post will reach via ripple effect, who does have Congenital Rubella Syndrome, or is a caregiver for someone who has it.
If you could please go to this post that I am sharing on the public Congenital Rubella Syndrome Facebook page https://www.facebook.com/congenitalrubellasyndrome , and re-share the post about The CRS Patient Voice Initiative with anyone in your circles or groups ( via all social networks, websites, and blogs ). This is the only way that we can get the help that we need. TREND Community needs enough Data for analysis. Thanks in advance.
#CongenitalRubellaSyndrome #CRS TREND Community
Friday, January 19, 2018
Tuesday, January 16, 2018
Press Release: The Congenital Rubella Syndrome Community Joins TREND Community to Discover Patient Insights About Disease Burden and Progression Through Social Data Analysis
Press Release: The Congenital Rubella Syndrome Community Joins TREND Community to Discover Patient Insights About Disease Burden and Progression Through Social Data Analysis
Monday, February 01, 2016
Congenital Rubella Syndrome YouTube video playlist
https://www.youtube.com/playlist?list=PLO88wWWMXWoKj2YSCcvg5GGxKqVT481FD
Congenital Rubella Syndrome YouTube video playlist
#congenitalrubellasyndrome #crs
Thursday, August 27, 2015
Congenital Rubella Syndrome
Please visit and "Like" the page if you want to know more. Please share the page to others. Thanks!
https://plus.google.com/u/0/109011181654208490901/posts
is the Congenital Rubella Syndrome Public Information and Education Page on Google + .
http://www.wolfcrane.com/p/congenital-rubella-syndrome.html
#CongenitalRubellaSyndrome #CRS #Measles #GermanMeasles #Rubella #Vaccine #Vaccination #Vaccinations #CongenitalBirthDefects #PrenatalRubella
Friday, March 06, 2015
Living with Congenital Rubella Syndrome: "You get called stupid or slow. You aren't. I'm not." - Measles & Rubella Initiative
http://www.measlesrubellainitiative.org/living-with-congenital-rubella-syndrome-you-get-called-stupid-or-slow-you-arent-im-not/
Part 2 of the article can be read here: http://www.measlesrubellainitiative.org/living-with-congenital-rubella-syndrome-you-get-used-to-being-stared-at-i-just-smile-i-like-who-i-am-and-how-far-i-have-come/
Friday, February 27, 2015
Bezalel's Heart - Bez is having his PDA Ligation today!
https://www.facebook.com/BezalelsHeart/photos/a.207317549438498.1073741828.207312946105625/264629903707262/?type=1&theater
Bez is having his Cardiac PDA Ligation Surgery today. Please keep him in your thoughts and prayers.
#CongenitalRubellaSyndrome #CRS
Saturday, February 21, 2015
CDC Global Health - Photo Essays - Wide age range measles-rubella vaccination campaign, Nepal (2012-2013)
http://www.cdc.gov/globalhealth/index.html
#Measles #Rubella #CongenitalRubellaSyndrome #CRS #GermanMeasles
Thursday, February 19, 2015
From bullied childhood to national spotlight: An interview with disabled mugging victim Alan Barnes and his 'fairy godmother' which will restore your faith in humanity | Daily Mail Online
From bullied childhood to national spotlight: An interview with disabled mugging victim Alan Barnes and his 'fairy godmother' which will restore your faith in humanity
http://www.dailymail.co.uk/news/article-2943321/From-bullied-childhood-national-spotlight-interview-disabled-mugging-victim-Alan-Barnes-fairy-godmother-restore-faith-humanity.html
#GermanMeasles #Measles #CongenitalRubellaSyndrome #CRS
Saturday, February 14, 2015
Wednesday, January 28, 2015
Should You Worry About Measles?
Tuesday, October 28, 2014
Wolfcrane Says: Congenital Rubella Syndrome
http://www.wolfcrane.com/p/congenital-rubella-syndrome.html