http://news.trend.community/home/the-crs-patient-voice-initiative
The CRS Patient Voice Initiative , please re-share, and re-Tweet: http://news.trend.community/home/the-crs-patient-voice-initiative , to get your invitation, go to: https://trend.community/ .
Can I please ask a favor of my friends and fellow members: Even if there isn't anyone in your immediate circles that have Congenital Rubella Syndrome, there's bound to be someone out there that this post will reach via ripple effect, who does have Congenital Rubella Syndrome, or is a caregiver for someone who has it.
If you could please go to this post that I am sharing on the public Congenital Rubella Syndrome Facebook page https://www.facebook.com/congenitalrubellasyndrome , and re-share the post about The CRS Patient Voice Initiative with anyone in your circles or groups ( via all social networks, websites, and blogs ). This is the only way that we can get the help that we need. TREND Community needs enough Data for analysis. Thanks in advance.
#CongenitalRubellaSyndrome #CRS TREND Community
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Showing posts with label heart. Show all posts
Showing posts with label heart. Show all posts
Thursday, February 15, 2018
The CRS Patient Voice Initiative
Labels:
congenital birth defects,
Congenital Rubella Syndrome,
CRS,
deaf,
disability,
disabled,
eyes,
eyesight,
German Measles,
hard of hearing,
Hear,
heart,
invisible disability,
Prenatal Rubella,
rubella
Friday, March 06, 2015
Bezalel's Heart
Labels:
Bezalel,
cardiac,
charities,
charity,
Congenital Rubella Syndrome,
CRS,
fundraise,
fundraisers,
German Measles,
heart,
measles,
rubella,
surgery
Saturday, February 28, 2015
Newtown Rotary Gift Of Life Keeps On Giving | The Newtown Bee
Newtown Rotary Gift Of Life Keeps On Giving | The Newtown Bee: "Newtown Rotary Gift Of Life Keeps On Giving"
http://newtownbee.com/news/0001/11/30/newtown-rotary-gift-life-keeps-giving/255538
#CongenitalRubellaSyndrome #CRS
http://newtownbee.com/news/0001/11/30/newtown-rotary-gift-life-keeps-giving/255538
#CongenitalRubellaSyndrome #CRS
Labels:
Bezalel,
cardiac,
charities,
charity,
Congenital Rubella Syndrome,
CRS,
German Measles,
heart,
measles,
surgery
Friday, February 27, 2015
Bezalel's Heart - Bez is having his PDA Ligation today!
Bezalel's Heart - Timeline Photos:
https://www.facebook.com/BezalelsHeart/photos/a.207317549438498.1073741828.207312946105625/264629903707262/?type=1&theater
Bez is having his Cardiac PDA Ligation Surgery today. Please keep him in your thoughts and prayers.
#CongenitalRubellaSyndrome #CRS
https://www.facebook.com/BezalelsHeart/photos/a.207317549438498.1073741828.207312946105625/264629903707262/?type=1&theater
Bez is having his Cardiac PDA Ligation Surgery today. Please keep him in your thoughts and prayers.
#CongenitalRubellaSyndrome #CRS
Saturday, November 22, 2014
*URGENT*: Bezalel's Heart Update. Please re-share to all social networks.
*URGENT*: Bezalel's Heart Update. Please re-share to all social networks.
https://www.facebook.com/BezalelsHeart/posts/220591858111067
#Bezalel #CongenitalRubellaSyndrome #Heart #Cardiac #Pediatric
https://www.facebook.com/BezalelsHeart/posts/220591858111067
#Bezalel #CongenitalRubellaSyndrome #Heart #Cardiac #Pediatric
Friday, November 21, 2014
Bezalel's Heart
Bezalel is a fellow Congenital Rubella Syndrome survivor.
Please consider helping him, and even if you can't afford to: please share this page with all of your social networks.
http://www.gofundme.com/BezalelPDALigation
The more people know about his situation, the better.
Please consider helping him, and even if you can't afford to: please share this page with all of your social networks.
http://www.gofundme.com/BezalelPDALigation
The more people know about his situation, the better.
For more information on Congenital Rubella Syndrome, go here:
Labels:
Bezalel,
cardiac,
charities,
charity,
Congenital Rubella Syndrome,
CRS,
fundraise,
fundraisers,
German Measles,
heart,
Prenatal Rubella,
rubella,
surgery
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