The CRS Patient Voice Initiative

http://news.trend.community/home/the-crs-patient-voice-initiative
The CRS Patient Voice Initiative , please re-share, and re-Tweet: http://news.trend.community/home/the-crs-patient-voice-initiative , to get your invitation, go to: https://trend.community/ .
Can I please ask a favor of my friends and fellow members: Even if there isn't anyone in your immediate circles that have Congenital Rubella Syndrome, there's bound to be someone out there that this post will reach via ripple effect, who does have Congenital Rubella Syndrome, or is a caregiver for someone who has it.
If you could please go to this post that I am sharing on the public Congenital Rubella Syndrome Facebook page https://www.facebook.com/congenitalrubellasyndrome , and re-share the post about The CRS Patient Voice Initiative with anyone in your circles or groups ( via all social networks, websites, and blogs ). This is the only way that we can get the help that we need. TREND Community needs enough Data for analysis. Thanks in advance.
#CongenitalRubellaSyndrome #CRS TREND Community

TREND Community

https://trend.community/

TREND Community is an invitation-only network of consented patients and caregivers living with rare disease who are engaged in community powered science.

The Value of Being Able to Get Out of Bed Each Morning.

https://www.christopherreeve.org/blog/life-after-paralysis/the-value-of-being-able-to-get-out-of-bed-each-morning

To the Doctors Who Expect Us to 'Just Live With It'

https://themighty.com/2016/11/getting-treatment-from-doctors-for-gastroparesis/

German TV documentary on fascia ( now with English voiceover ).

https://youtu.be/vIFDwDdGnhQ

6 Things You Must Know About the Disabilities we can't see

6 Things You Must Know About the Disabilities we can't see

http://m.mic.com/articles/122187/5-things-you-must-know-about-the-disabilities-we-can-t-see